How a Physiatric Clinical Data Registry Is Changing How We Understand Our Patient Populations and Their Outcomes: Tales from Launching AAPM&R Registry's Low Back Pain and Ischemic Stroke Pilots-How a Physiatric Clinical Data Registry Is Changing How We Understand Our Patient Populations and Their Outcomes: Tales from Launching AAPM&R Registry's Low Back Pain and Ischemic Stroke Pilots

How a Physiatric Clinical Data Registry Is Changing How We Understand Our Patient Populations and Their Outcomes: Tales from Launching AAPM&R Registry's Low Back Pain and Ischemic Stroke Pilots

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Video Summary

The Academy of Physical Medicine and Rehabilitation has developed a clinical data registry to collect data on low back pain and ischemic stroke. The registry aims to improve patient care and outcomes, as well as demonstrate the value of physiatry in the medical landscape. Patient-reported outcomes (PROs) are a key component of the registry, with the Academy using the PROMIS-29 questionnaire as the core PRO. This questionnaire assesses physical function, anxiety, depression, fatigue, sleep disturbance, ability to participate in social roles and activities, pain interference, and pain intensity. The registry is currently enrolling patients and aims to collect data to guide treatment decisions and improve quality of care. Early adopters of the registry have reported benefits such as improved patient engagement and the ability to identify barriers to recovery. The registry also provides insights into the effectiveness of treatments, as well as cost savings. The registry interface is user-friendly and allows for easy data collection and analysis. The Academy is actively seeking more participants and encourages interested individuals to contact the registry for more information.

Keywords

clinical data registry

low back pain

ischemic stroke

patient-reported outcomes

PROMIS-29 questionnaire

treatment decisions

patient engagement

cost savings

data analysis