Member May 2025: PM&R in the care of individuals with Motor Neuron Diseases (1.25 CME) (On Demand)-Session Recording

Video Transcription

Video Summary

In a recent AAPMNR session, member engagement coordinator Christina Ghanem introduced Dr. Carter, who, along with experts Dr. Eliana Howard, Dr. Nassim Raad, and Dr. Sabrina Paganoni, discussed the critical role of physiatrists in neuromuscular medicine. Dr. Howard, a pioneer in ALS care, emphasized the vital role physiatrists play in delivering coordinated care for veteran patients with ALS. She highlighted the ability of physiatrists to provide hope and improve quality of life through interdisciplinary teamwork. Dr. Raad explored the evolving needs of individuals with spinal muscular atrophy (SMA), spotlighting the essential role physiatry plays in interdisciplinary management, which includes assessing functionality, respiratory care, and bone health, reflecting on the unique skills that physiatrists bring to such complex conditions.<br /><br />Dr. Paganoni, a leader in ALS research, focused on the transformative power of clinical trials, like the Healy ALS Platform Trial, which accelerates treatment development through collaborative testing of multiple therapies simultaneously. She stressed the importance of a patient-centered approach and the advancement of ALS science through collaborative research efforts.<br /><br />The panelists collectively highlighted the expanding opportunities and responsibilities for physiatrists in neuromuscular care, particularly with advancements in gene-targeted therapies that extend patient lifespans and necessitate continued advocacy for physiatric leadership. The session concluded with a thoughtful discussion on the benefits of further training for those interested in neuromuscular research and the collaboration across related disciplines to support patients comprehensively.

Keywords

AAPMNR

physiatrists

neuromuscular medicine

ALS care

interdisciplinary teamwork

spinal muscular atrophy

functional assessment

respiratory care

Healy ALS Platform Trial

gene-targeted therapies

patient-centered approach

collaborative research