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Member May: PM&R in the care of individuals with M ...
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Video Summary
In this insightful webinar, Dr. Christina Ghanem, Dr. Eliana Howard, Dr. Nassim Raad, and Dr. Sabrina Paganoni delve into the vital role physiatrists play in the care for patients with neuromuscular diseases, especially ALS (amyotrophic lateral sclerosis) and SMA (spinal muscular atrophy). Dr. Eliana Howard emphasizes the profound impact physiatrists can have on patients with ALS through interdisciplinary care, which improves the quality of life and can extend life expectancy. She advocates for physiatrists leading ALS care, given their holistic management skills that focus on person-centered care. <br /><br />Dr. Nassim Raad highlights her work with adult patients suffering from spinal muscular atrophy, underscoring the physiatrists' unique ability to manage complex, lifelong conditions as treatments improve patients' life expectancy. She articulates the importance of a comprehensive approach involving pulmonary, nutritional, and orthopedic care—all areas where physiatry excels. <br /><br />Dr. Sabrina Paganoni discusses her transition from clinical care to research leadership, highlighting her involvement with the Healy ALS platform trial, an innovative approach to ALS treatment research. This design, adapted from similar successful models in oncology, allows for concurrent testing of multiple treatments, vastly accelerating the possibility of finding effective therapies.<br /><br />Throughout the session, the essential collaboration between disciplines and the advancement of research and care through teamwork are emphasized. They discuss the benefits of neuromuscular fellowship programs, alongside highlighting the importance of maintaining a broad awareness of advancements across different specialties and integrating those into regular patient care. This well-rounded approach not only optimizes care for patients today but sets the groundwork for future medical advancements.
Keywords
physiatrists
neuromuscular diseases
ALS
SMA
interdisciplinary care
holistic management
spinal muscular atrophy
comprehensive approach
Healy ALS platform trial
research leadership
neuromuscular fellowship
collaboration
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