The Secrets to Making Data Your Friend: How AAPM&R Registry Participants Are Using Their Data to Improve Care for Stroke and Low Back Pain Patients-The Secrets to Making Data Your Friend: How AAPM&R Registry Participants are Using Their Data to Improve Care for Stroke and Low Back Pain Patients

The Secrets to Making Data Your Friend: How AAPM&R Registry Participants are Using Their Data to Improve Care for Stroke and Low Back Pain Patients

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Video Transcription

Video Summary

The video transcript discusses the importance of data in healthcare and introduces a registry that aims to track real-world care and patient outcomes. It emphasizes the need for data collection to improve patient outcomes in the field of physiatry. The registry serves as a benchmark for quality improvement initiatives and is described as a single repository of data that will define rehabilitation practice. The participating organizations and sources of data, including electronic medical records and patient-reported outcomes, are mentioned. The PROMIS-29 tool is used for patient-reported outcomes in various domains. The workflow for data collection is explained, with surveys being completed at different intervals throughout the patient's care. Examples of data analysis and the experiences of three participating organizations are shared. The transcript also covers the challenges of data collection, including limited resources and the need for buy-in from patients and physicians.<br /><br />In terms of implementation, the nurses identify stroke patients for data entry, and the physicians enter the ICD-10 code into the registry. Patient-reported outcomes are collected and sent to medical records for access by the attending physician. Follow-up data collection is done via email after discharge. The motivation to participate in the registry is to contribute to a national registry, access patient outcomes, benchmark with other centers, and justify the clinical impact of IRFs for stroke patients. Challenges include limited resources, determining family involvement in data entry, utilizing speech-language pathologists' time, and getting buy-in from patients, family, and physicians. Data collection rates vary but can be improved by increasing physician involvement and educating clinicians and patients. The registry provides opportunities for measuring and benchmarking outcomes, performance assessment, and quality improvement. Implementation at Vanderbilt University was seamless, but challenges include limited space and patient diversity. The data is housed in a repository managed by Arbor Metrics, and creative solutions are shared through a governance council. The ultimate goal is to improve patient care and outcomes.

Keywords

data

healthcare

registry

patient outcomes

physiatry

electronic medical records

patient-reported outcomes

workflow

challenges

limited resources

buy-in