Member May: Pediatric Rehab Medicine: Off the Beaten Path (1.25 CME)-Session Recording

Video Transcription

Video Summary

The session, "Member May," hosted by the pediatric community, focused on several innovative approaches to pediatric care, with a strong emphasis on providing a respectful, inclusive, and safe environment. The event was recorded for later access, and participants were encouraged to engage professionally throughout. Three main topics were covered.<br /><br />Firstly, the Courageous Parents Network (CPN) was introduced as a valuable nonprofit resource for families of children with severe neurological impairments. It provides digital resources, videos, blogs, and guides collaboratively developed by parents and clinicians. These resources aim to educate parents, provide emotional support, and empower them to engage in informed decision-making processes, especially regarding complex medical options like tracheostomies.<br /><br />Secondly, an innovative outpatient clinic model for treating children with Functional Neurologic Disorder (FND) was presented. This multidisciplinary clinic at Children's Hospital of Colorado combines the expertise of rehabilitation physicians, neuropsychologists, and therapists to diagnose and treat FND. The approach emphasizes consistent messaging, psychoeducation, validation, and hope, tailored through collective case evaluations and therapy, proving effective in achieving patient buy-in.<br /><br />Lastly, the Global Rehabilitation Interdisciplinary Program (GRIP) at Children's Hospital of Philadelphia was discussed, highlighting its approach to servicing international patients. This program leverages a multidisciplinary team to offer intensive, culturally sensitive care, focusing on episodes of treatment and caregiver education, with ongoing efforts to enhance follow-through when transitioning patients back to their home countries.<br /><br />Overall, the session underscored the importance of multidisciplinary collaboration, tailored communication strategies, and cultural sensitivity in pediatric care, with resources and models applicable across various institutions.

Keywords

pediatric care

Courageous Parents Network

neurological impairments

Functional Neurologic Disorder

Children's Hospital of Colorado

multidisciplinary clinic

Global Rehabilitation Interdisciplinary Program

Children's Hospital of Philadelphia

cultural sensitivity

inclusive environment

digital resources